True health stories-3 medical memoirs that share the HEART of health

I think the best medical books are those about real people who face real health challenges that are often life changing or even life threatening. There is nothing like experiencing a serious illness or injury to make you an expert about it.

I read lots of books for my own pleasure and to review for this blog. Although health/medicine can be a genre in itself, many different types of books and media can illustrate medical science.

Some are fiction including drama, comedy, and often science fiction. One I have reviewed here is

Say Goodbye for Now.

SAY GOODBYE FOR NOW- A Novel
SAY GOODBYE FOR NOW by Catherine Ryan Hyde

Most however are non-fiction. One in this category that I reviewed relates medical history.

Pandemic by Sonia Shah
PANDEMIC BY SONIA SHAH

Pandemic

Medical writers often explain medical conditions, offer information on treatment options, give advice, and encourage healthy habits. One of these is

Mind Over Meds

MIND OVER MEDS- book cover
MIND OVER MEDS BY ANDREW WEIL, MD

But as helpful and interesting as these are, I think the best medical books are those about real people who face real health challenges that are often life changing or even life threatening. There is nothing like experiencing a serious illness or injury to make you an expert about it.

And when the person with the problem writes or tells the story, we don’t just learn about it, we feel the emotions it provokes also.

Share your story

I have reviewed several of these “medical memoirs” here and will likely continue to do so. In a way, we are all living our own health journeys and many of you could offer reflections on how you and your family deal with your unique medical challenges.

If you are willing to share the perspectives you have gained through a health issue or medical experience, contact me; I would love to read it, and maybe share it here with my other readers. Your remarks may remain anonymous if you prefer.

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Explore these “medical memoirs” with me.

The Best of Us

A Memoir

by Joyce Maynard

Ms. Maynard’s story opened with a  failed marriage/bad divorce saga with adult children torn between the two parents, persistent anger and bitterness, and attempts to ease the pain with a series of bad choices in lovers. Equally sad was her telling of a complicated  and ultimately failed adoption attempt.

Finally she and we can breath a sigh of relief when she meets a man and seems to have found true love at last. But that comes to an abrupt halt when he is diagnosed with cancer.

From then on she poignantly describes a life turned upside down as she enters new territory as a caregiver. As she relates how their lives changed, we the readers are changed also, learning to recognize what is truly important in life. As Ms. Maynard  writes,

“success, money, beauty, passion, adventure, possessions- have become immaterial. Breathing would be enough.”

Read this book if you want your assumptions about life and death to be challenged and changed. You may read an excerpt at this link

The Best of Us-Chapter 1

Tears of Salt

A Doctor’s Story

by Pietro Bartolo; Lidia Tilotta

Dr. Pietro Bartolo practices medicine on the tiny Italian island of Lampedusa, in the Mediterranean Sea. Lampedusa, known for its friendly people, sunny skies, pristine beaches, and turquoise waters famous for fishing, seems an idyllic place to live, work, and visit.

But for the past 20 years, Dr.Bartolo has cared for not just residents and tourists, but for hundreds of refugees- people who risk their lives crossing the Mediterranean from northern Africa, fleeing poverty and political unrest. The lucky ones land on shore injured and sick. The unlucky ones wash ashore dead, having died en route or drowning after falling from a capsized or wrecked boat, sometimes only a few feet from shore.

In this memoir, Dr. Bartolo shares the stories of many of these people, giving them the names and faces that we don’t see watching news stories about the refugee crisis. He also shares his own life story of growing up on the island, leaving for medical school, and returning to raise a family and to practice medicine.

Dr. Bartolo’s story was also told in the documentary film FIRE AT SEA

He never expected to become the front-line help for hundreds of desperate people. With no specific training on how to manage an avalanche of desperate, sick, and injured refugees, and with little resources, he manages to put together a system for triaging, evaluating, and treating these people, then sending them on for more advanced medical care or to immigration centers in Europe.

For the less fortunate, he serves as medical examiner, to determine the cause of death for those who do not make it to Lampedusa alive; sometimes taking body parts to extract DNA to identify them, so families can be notified. He states he has never grown comfortable to this aspect of his job.

As a physician myself, I marvel at Dr. Bartolo’s caring and commitment to people who will never be able to repay him for his sacrifice. He approaches his work as a mission of mercy, and treats every person with the utmost respect, no matter their circumstance. Some of the people he treats become almost like family; he has even tried to adopt a couple of orphaned children but cannot due to legalities.

Dr. Bartolo’s story reads like a conversation. I think you will like him, and admire him for his dedication and selfless service.  His life should encourage all of us to consider what we can each do to lessen someone else’s suffering.

Follow this link to my review of

Love conquers fear-a memoir of hope

The Napalm Girl’s Journey through the Horrors of War to Faith, Forgiveness and Peace

I received a free digital or paper copy of these books in return for posting a frank review on my blog and/or social media.

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explore the HEART of health with me

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Dr. Aletha

Women’s health – meds to control pain and prevent disease

This post reviews drugs for women’s health issues. Elagolix treats endometriosis pain but not infertility. Elagolix and ulipristal may help with uterine fibroids. Prasterone relieves dyspareunia and improves sexual desire. Botox and monoclonal antibodies prevent migraine pain. HPV vaccine prevents cervical cancer, and Shingrix prevents shingles more effectively.

updated May 2, 2024

In this post, I review drugs that treat conditions exclusive to or common in women. These are broad topics so I have linked to several authoritative sources.

This information is current as of the date of original publication or update. It may have changed by the time you read this. I invite you to fact-check what you read here.

Please do not use this information for diagnosis or treatment purposes. Before making health decisions, discuss with your physician or other qualified healthcare provider.

Photo by rawpixel.com on Pexels.com

Relieving the pain of endometriosis

Women with endometriosis suffer infertility, excessive bleeding, painful periods, and pelvic pain unrelated to periods. In endometriosis, uterine tissue grows outside the uterus.

Endometriosis can be difficult to diagnose, requiring invasive procedures to discover. Treatment depends on the goal, whether pregnancy, pain relief, or both. Short of surgery, hormonal therapy has been the mainstay of treatment.

A hormonal drug, elagolix, brand name Orilissa, is the first of its kind specifically developed and approved to treat “moderate to severe” endometriosis pain. It does not help with infertility.

 

Stop bleeding fibroids

Researchers are studying elagolix and another hormonal drug ulipristal for treating uterine fibroids. Fibroids are growths within the uterine that can cause pain and excessive bleeding. Initial trials show both of these drugs can significantly decrease bleeding and pain. However, neither is currently FDA-approved for treating fibroid.

Easing dyspareunia

After menopause many women develop atrophy of the vagina, making it thin, dry, and easily irritated, leading to painful sex, or dyspareunia. An intravaginal medication, prasterone, brand name Intrarosa, can help relieve the discomfort. Studies show it may also help improve sexual desire and arousal, but it is not labeled for this.

Manufactured by AMAG Pharmaceuticals, it is for “moderate to severe” symptoms. Also known as DHEA, it is a steroid that transforms into estrogen in the vagina, administered as a once-daily vaginal insert at bedtime, applied with an applicator.

Other options for treating vaginal atrophy symptoms are oral or vaginal estrogen and/or vaginal lubricants.

Prevention of migraine pain and disability

Migraine, although not exclusive to women, occurs more frequently in them than in men. For infrequent headaches, non-prescription pain relievers are effective and recommended. But for severe, frequent, or persistent symptoms prevention is recommended to improve quality of life.

Botox, onabotulinumtoxin A, has been FDA-approved for treating chronic migraine, meaning patients with frequent headaches and other migraine symptoms for at least 3 months.

Yes the same drug used to treat wrinkles, Botox, can prevent migraine. For migraine, the drug is injected into the upper facial muscles by a physician specifically trained in its use.

A calcitonin gene-related peptide (CGRP) receptor is responsible for transmitting migraine pain. Monoclonal antibodies bind to the receptor, blocking the pain.

The antibodies are produced in a laboratory but work like antibodies naturally produced by the body. These drugs are given by injection.

  • Erenumab-Aimovig
  • Galcanezumab-Emgality
  • Fremanezumab-Ajoovy

Gepant drugs also block the CGRP receptors, both preventing and relieving migraine. These are in pill form so are taken by mouth.

  • Rimegepant-Nurtec ODT
  • Ubrogepant-Ubrelvy 

I also discuss migraine in this post.

Preventing cervical cancer with the HPV vaccine

Infection with the HPV, human papillomavirus, causes genital warts and changes in the cervix called CIN which can lead to cervical cancer.

According to a review of clinical trials by Cochran, vaccination against this virus effectively prevents infection and thus fewer cases of CIN. Since a significant percentage of CIN progresses to cancer, we can expect fewer women will develop invasive cervical cancer, the 4th most common cancer in women worldwide.

The vaccine, Gardasail 9, originally approved for use in females ages 9 to 26 years, received FDA approval for use up to age 45 years.

Stopping shingles with the zoster vaccine

And speaking of vaccines, a new zoster (shingles) vaccine, Shingrix, prevents the painful rash much more effectively than the original vaccine Zostavax. It ranges in effectiveness from 91% to 97% at preventing shingles, depending on age. The first vaccine was 51% effective.

Zoster is a reactivation of the varicella virus that causes chickenpox. It causes a painful rash known as shingles; the pain may continue after the rash is gone. It can happen at any age, but symptoms tend to be worse in older persons.

exploring the HEART of women’s health

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Dr. Aletha